Selfies of Sickness: The Use of Video Diaries with Chronically Ill Children

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This paper describes the use of video diaries as a tool for understanding children’s patient experience and as a potential method for directly gathering patient experience information from children. It was hypothesized that this method would uncover otherwise hidden knowledge about children ages 10–16 years with chronic illnesses. The aim of this paper is to assess the potential applicability of this method as a standalone tool for the public healthcare sector to capture and better understand the patient experiences as a basis for continuous service development. Therefore, this paper does not describe the results on children’s patient experiences. The video diaries proved to offer rich data, but certain shortcomings were also identified. Motivating teens, especially boys, was found to be difficult. Needed changes are addressed, and suggestions for future work are presented.
Original languageEnglish
Title of host publicationBuilding Capacity for Health Informatics in the Future
EditorsFrancis Lau, John Bartle-Clar, Gerry Bliss, Elizabeth Borycki, Karen Courtney, Alex Kuo
Place of PublicationAmsterdam
PublisherIOS Press
Number of pages6
ISBN (Electronic)978-1-61499-742-9
ISBN (Print)978-1-61499-741-2
Publication statusPublished - 2017
MoE publication typeA4 Conference publication
EventInformation Technology and Communications in Health - Inn at Laurel Point, Victoria, Canada
Duration: 16 Feb 201719 Feb 2017

Publication series

NameStudies in Health Technology and Informatics
ISSN (Print)0926-9630
ISSN (Electronic)1879-8365


ConferenceInformation Technology and Communications in Health
Abbreviated titleITCH


  • probes
  • video diaries
  • patient experience
  • feedback
  • children
  • teenagers
  • chronic illness


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