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Abstract
Background: Patients’ online record access (ORA) enables patients to read and use their health data through online digital solutions. One such solution, patient-accessible electronic health records (PAEHRs) have been implemented in Estonia, Finland, Norway, and Sweden. While accumulated research has pointed to many potential benefits of ORA, its application in mental healthcare (MHC) continues to be contested. The present study aimed to describe MHC users’ overall experiences with national PAEHR services. Methods: The study analysed the MHC-part of the NORDeHEALTH 2022 Patient Survey, a large-scale multi-country survey. The survey consisted of 45 questions, including demographic variables and questions related to users’ experiences with ORA. We focused on the questions concerning positive experiences (benefits), negative experiences (errors, omissions, offence), and breaches of security and privacy. Participants were included in this analysis if they reported receiving mental healthcare within the past two years. Descriptive statistics were used to summarise data, and percentages were calculated on available data. Results: 6,157 respondents were included. In line with previous research, almost half (45%) reported very positive experiences with ORA. A majority in each country also reported improved trust (at least 69%) and communication (at least 71%) with healthcare providers. One-third (29.5%) reported very negative experiences with ORA. In total, half of the respondents (47.9%) found errors and a third (35.5%) found omissions in their medical documentation. One-third (34.8%) of all respondents also reported being offended by the content. When errors or omissions were identified, about half (46.5%) reported that they took no action. There seems to be differences in how patients experience errors, omissions, and missing information between the countries. A small proportion reported instances where family or others demanded access to their records (3.1%), and about one in ten (10.7%) noted that unauthorised individuals had seen their health information. Conclusions: Overall, MHC patients reported more positive experiences than negative, but a large portion of respondents reported problems with the content of the PAEHR. Further research on best practice in implementation of ORA in MHC is therefore needed, to ensure that all patients may reap the benefits while limiting potential negative consequences.
Original language | English |
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Article number | 481 |
Pages (from-to) | 1-13 |
Number of pages | 13 |
Journal | BMC Psychiatry |
Volume | 24 |
Issue number | 1 |
DOIs | |
Publication status | Published - 2 Jul 2024 |
MoE publication type | A1 Journal article-refereed |
Keywords
- EHRs
- Electronic health records
- Mental healthcare
- Online record access
- ORA
- PAEHR
- Patient-accessible electronic health records
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Dive into the research topics of 'Experiences from patients in mental healthcare accessing their electronic health records : results from a cross-national survey in Estonia, Finland, Norway, and Sweden'. Together they form a unique fingerprint.Datasets
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Experiences from patients in mental healthcare accessing their electronic health records: results from a cross-national survey in Estonia, Finland, Norway, and Sweden
Fagerlund, A. J. (Creator), Bärkås, A. (Creator), Kharko, A. (Creator), Blease, C. R. (Creator), Hagström, J. (Creator), Huvila, I. (Creator), Hörhammer, I. (Creator), Kane, B. (Creator), Kristiansen, E. (Creator), Kujala, S. (Creator), Moll, J. (Creator), Rexhepi, H. (Creator), Scandurra, I. (Creator), Simola, S. (Creator), Soone, H. (Creator), Wang, B. (Creator), Åhlfeldt, R. M. (Creator), Hägglund, M. (Creator) & Johansen, M. A. (Creator), figshare, 15 Aug 2024
DOI: 10.6084/m9.figshare.c.7313074.v1, https://springernature.figshare.com/collections/Experiences_from_patients_in_mental_healthcare_accessing_their_electronic_health_records_results_from_a_cross-national_survey_in_Estonia_Finland_Norway_and_Sweden/7313074/1
Dataset
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-: Towards socially inclusive digital society: transforming service culture (DigiIN)
Kujala, S. (Principal investigator), Hörhammer, I. (Project Member), Ghorbanian Zolbin, M. (Project Member), Valkonen, P. (Project Member) & Simola, S. (Project Member)
01/09/2022 → 31/08/2025
Project: Academy of Finland: Strategic research funding
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NORDeHEALTH: Nordic eHealth for Patients: Benchmarking and Developing for the Future
Kujala, S. (Principal investigator), Simola, S. (Project Member), Ghorbanian Zolbin, M. (Project Member), Hörhammer, I. (Project Member), Valkonen, P. (Project Member) & Simola, S. (Project Member)
01/01/2021 → 31/12/2023
Project: Academy of Finland: Other research funding