Dual-Perspective Modeling of Patient Pathways: A Case Study on Kidney Cancer

Anna Grøndahl Larsen*, Ragnhild Halvorsrud, Rolf Eigil Berg, Märt Vesinurm

*Corresponding author for this work

Research output: Chapter in Book/Report/Conference proceedingConference article in proceedingsScientificpeer-review

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Patient pathway has become a key concept in the organization of healthcare. However, the materialization and operationalization of pathways often focus on work processes of health personnel, clinical decision-making, and deadlines, contradicting the strong patient-oriented perspective that is inherent in their definition. In this paper, we introduce a patient-centered perspective of kidney cancer pathways, reporting on a dual-perspective strategy to map and model patient pathways. Utilizing a multi-method approach, we map and model pathways from the perspectives of both healthcare personnel and patients and investigate the feasibility of the Customer Journey Modeling Language (CJML) for modeling patient pathways. To prevent confusion, the planned pathway as seen from the hospital perspective and the actual pathway experienced by the patient are referred to as ‘pathway’ and ‘journey’, respectively. In the paper, we describe methods to engage with healthcare professionals and patients to collect the necessary information to create precise models, and we show how precise modeling of patient pathways requires the integration of several information sources. Moreover, the study underlines the value of examining pathways from a dual perspective, as the two perspectives corroborate and supplement each other, illustrating the complexity of patient journeys. Finally, the findings provide insights into the feasibility of CJML, firstly underlining that the usefulness of visual models is context-dependent, and secondly, suggesting that the methods and subsequent visualizations may be useful as organizational, instructional, and communicative tools.
Original languageEnglish
Title of host publicationDigital Health and Wireless Solutions
Subtitle of host publicationFirst Nordic Conference , NCDHWS 2024 Oulu, Finland, May 7–8, 2024 Proceedings, Part II
EditorsMariella Särestöniemi, Pantea Keikhosrokiani, Daljeet Singh, Erkki Harjula, Aleksei Tiulpin, Miia Jansson, Minna Isomursu, Simo Saarakkala, Jarmo Reponen, Mark van Gils
ISBN (Electronic)978-3-031-59091-7
ISBN (Print)978-3-031-59090-0
Publication statusPublished - 2024
MoE publication typeA4 Conference publication
EventNordic Conference on Digital Health and Wireless Solutions - Oulu, Finland
Duration: 7 May 20248 May 2024
Conference number: 1

Publication series

NameCommunications in Computer and Information Science
ISSN (Print)1865-0929
ISSN (Electronic)1865-0937


ConferenceNordic Conference on Digital Health and Wireless Solutions
Abbreviated titleNCDHWS


  • Feasibility Study
  • Patient Journey
  • Customer Journey Modeling Language (CJML)
  • Patient Pathway


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