Development of the Patient Experience Questionnaire for Parents of Pediatric Patients (PEQP)

Johanna Kaipio, Nina Karisalmi, Kari Hiekkanen, Hanna Stenhammar, Pekka Lahdenne

Research output: Chapter in Book/Report/Conference proceedingChapterScientificpeer-review

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Patient experience (PX) is an important evaluation criterion for quality in healthcare. Compared to patient satisfaction, however less research has focused on the development of instruments to measure experiences of patients and their families. In the article, we describe the process of developing a PX questionnaire for the parents of pediatric patients in the context of children's hospital and illustrate the questionnaire items for measuring PX. The phases of the development process included retrospective interviews, description of the themes influencing PX and the metrics for measuring PX, as well as iterative development of three versions of questionnaires including data gathering and factor analysis. The final versions of the surveys suggested for implementation at the hospitals include eight PX statements for the outpatient clinic and five statements for the ward. Compared to satisfaction surveys, the developed surveys emphasize the aspects of parent's attitude towards the illness, support for families, and daily arrangements with a child patient.

Original languageEnglish
Title of host publicationImproving Usability, Safety and Patient Outcomes with Health Information Technology
PublisherIOS Press
Number of pages6
ISBN (Electronic)978-1-61499-951-5
ISBN (Print)978-1-61499-950-8
Publication statusPublished - 1 Jan 2019
MoE publication typeA3 Book section, Chapters in research books
EventInformation Technology and Communications in Health - Victoria, Canada
Duration: 19 Feb 201921 Feb 2019

Publication series

NameStudies in Health Technology and Informatics
PublisherIOS Press
ISSN (Print)0926-9630
ISSN (Electronic)1879-8365


ConferenceInformation Technology and Communications in Health
Abbreviated titleITCH


  • children's hospital
  • measurement
  • parent
  • patient experience
  • pediatric patient
  • questionnaire


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